Posts Tagged With: hospital

Part 2. Mysteries, Emotional Rollercoasters and Flickers of Hope

(Please note there are pictures of deceased people here)

I lost a friend. She was 27 years old. She passed away on the 3rd of July 2014. I wanted to write earlier, but couldn’t. It makes me so sad. My malpa wiru (good friend).

We had some laughs, her and I. Most at my expense. ūüôā

I met her just after we moved to Alice Springs. She had come in to Alice as she was quite sick and was having some tests done. She was married and had a small beautiful boy. They all turned up at church one day after getting on one of our church busses. She gave her life to Jesus and became a part of God’s family. She lived a long way away, but I saw her again and again over the next couple of years when she would come in from community mostly to visit the hospital. She would always be wearing a bandanna and had the most beautiful smile. Each time she came in I would get to know her a little better, but it wasn’t until about 4 months ago when she came in for her second last trip here that I got to know her a lot better. We would talk of her home, of her family and of her love for Jesus. She wanted to share her story, of how God had changed her life. I did not know at that time of how sick she really was or how much her life had¬†changed. I thought that she had caught pneumonia and had just taken a while to recoup. I prayed with her often, and even shared her story at her request to a church we spoke at in Adelaide. She was really standing for her faith and it appeared she was getting physically stronger every day. She missed her family terribly and couldn’t wait to be discharged from hospital so she could return home.

She went home, but it was a short lived visit. Within a couple of weeks she was back, with what was to be her last time. This time, the doctors said that this was it. They called the family in. Her mum stayed with her. She had visits from many friends and family. I would go in, often with another friend from church and we would sing together and pray and read the Bible. It was good practice for me to read from her Pitjantjatjara Bible. She would help me read the words, until she got too tired and breathless and then she would just listen.

She urged me to share her story. She wanted people to know that Jesus was the true way. That He was real and how much her life had changed. One day when I was visiting, a lady was there that had known her for a long time. She was a remote nurse and had a lot to do with my friend’s care. I prayed with my friend as I did every time I visited and when we finished the nurse had tears in her eyes. She asked me if I could see her outside for a moment. When out there, she shared how my friend used to be very angry and volatile and an extremely difficult patient, but approximately 2 years ago, she began to see a change in her. Until now where she had seen a major change in her temperament and the way she dealt with people. She said she was certain it was due to my friend becoming a Christian. How wonderful it was to hear the testimony from this lady. She said she had first thought it was because she was being the best nurse, but she quickly realised that this was a profound change. She was not the only one to tell me this.

I had a social worker pull me aside and tell me the same thing a few days later. They could not attribute it to anything else. When I talked to her later about it and she went all shy with me and asked how I found out, I explained it was because she was now shining Jesus so much, that it had changed her so much that even people who didn’t believe in Him could see the difference in her and had to declare it as nothing short of a miracle (or at least something they couldn’t deny).

We were praying for a miracle, but I know she was ready to go home to heaven. She liked me to read the verse about there being (pika wiya) no more pain, no more tears. She made me promise I would tell others of her hope in Jesus, of the life to come if we believe in Him, of how she changed. I promised I would. She wanted to write her story, but sadly she never got to finish. She began, but got too weak.

Friends are hard to come by in this place, but she became my friend. We were from different worlds in some ways and yet we understood one another. The day she said ‘I used to say you were my friend, but now I call you my sister’ I will treasure that for the rest of my life. I pray for her family. In particular her husband and young son. They are wonderful people and¬†are¬†grieving so much.

I did not get to attend her funeral as I would have liked, my son was in hospital and I was with him. I have been holding back the grief of her loss until now as I would find it hard to cope with that and with all that was happening with my son. But it is time now. Time to share what she asked me to. Time to cry. Time to say goodbye.

She was a strong lady in spirit and her body just couldn’t keep up. I don’t understand why God chooses to heal some people and not others. I don’t know why she couldn’t stay here on this earth, but I do know I will see her again. She is with her little girl who she lost when the girl was 1 year old. She missed her terribly. I know she is finally in no pain and having no more suffering. I know she would be singing the song she was given just before she passed away and her smile would be so big as she is in the arms of her saviour. I miss her. As I do the many friends we have lost since arriving here.

The verse she had displayed in her hospital room was fitting for her then and for us now: ‘Be strong and courageous, for I am with you’.

One of the things she had written in her journal

One of the things she had written in her journal

Bronnie, me and our friend

Bronnie, me and our friend

My friend and I

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Mysteries, emotional roller coasters and flickers of hope Pt. 1

Allow me to share a journey that our family has and is still travelling on at this time. A few of my friends are going through similar experiences and my heart and prayers go out to them as they work through their frustrations and emotions and faith during this time.

I should have written this last week or even three days ago, when my report would be a glowing one of a trial near past and the lessons I have learnt. I was reminded last night that we are not out of the woods yet.

For those of you who don’t know, our eldest son Elijah has been sick since at least the start of the year. He has had well days, well weeks even, but the cycle was getting smaller and he was getting sicker with every bout. At first we thought that he just had a bad run with some viruses as we live in a place where some pretty nasty viruses present.

But when they kept coming and the fatigue was not lifting in between the times of sickness, and he lost his bubbly, cheeky self saying things to his brothers like “believe me you don’t want to be 10, it’s just too tough”, we just knew we had to do something. So back in May we took Elijah to the doctors and explained what was going on. They ordered blood tests and it came back positive for Ross River Virus. At least, we thought, now we have an answer and he should improve over time.

But that was not to be the case. For a week after the test, after much prayer, Elijah felt the best he had in a long time. He even commented “Mum, I think Jesus has healed me”. And that is what appeared to have happened.

Until one night, he complained of a tummy ache and went to bed to the most violent vomiting we had seen yet. He was up for half the night and then ended up lying on the couch and fell asleep. He slept through the entire next day. Even with the other boys yelling and playing as normal in the house. I tried to rouse him a few times to get some fluids in him, but he didn’t know where he was and who I was. He couldn’t handle light. He had a temp. I was glad he was sleeping as I knew he needed it, but I was worried he was confused when he woke.

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In Alice Springs hospital

Then in the evening a rash came out first on his face and then on the whole right side of his body. We had been holding off taking him to the hospital, as they usually send us home and say if they get worse bring them back blahblahblah… But once the rash came Ben carried him (still sleeping) to the car and took him to the hospital.

And there Elijah stayed for 5 days. His eye became bright red, and he couldn’t handle any light. He looked grey and couldn’t walk. They thought at first it was maybe meningitis, but they ruled that out. Then the tests began. Multiple blood tests, specimen tests and a small skin biopsy. But nothing was showing up. We had so many people praying for us and our church family came and visited. Was a wonderful time for seeing the body at work, even if it was a terrible time in other ways.

I kept expecting to call the virus card, as doctors do when there is no answer. But the doctors were amazing and thorough and for once in my life took me seriously. He got well enough to go home even though he still had a high temp and his eye was no better the rest of the symptoms had subsided. He had to wear an eye patch and his eye was not getting better, so when we took him back for his follow-up check he was seen by an eye doctor and diagnosed with uveitis. This is a common occurrence in people with an auto-immune disease which is where the doctors were heading with their testing.

The doctors here had exhausted what they could do from here in Alice so we were sent to Adelaide to the Women’s and Children’s Hospital. There Elijah went through a series of tests and they ruled out so many things that had been suggested. After 10 days in hospital there, we had come up with no answers . However he had begun to gain weight again, which is great as he had lost about 8kgs since the start of the year. We could feel the prayers of our brothers and sisters in Christ and were so well supported with many visiting to sit, pray and chat (not to mention bring chocolate and lollies- have I said thank you ūüôā ).

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The barium swallow test

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Goolwa Beach

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Day leave from the hospital

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When his brothers arrived

 

One family in particular, who have so may of their own struggles they are facing, were so beautiful in the way they ministered sacrificial love to us. They opened their home to the boys and Ben who had driven down from Alice so they could stay near us in the hospital. The family¬†also¬†offered for us to stay a few days down at their holiday home before we returned. This was a blessing and so much needed. It was the middle of winter, but we all went in the beach. What a healing place it is. I miss the beach so much even though I love our desert home. We had some lovely time with Ben’s mum and grandma as well. Which I know the boys will treasure forever. We always try to make the best out of a bad situation . We managed to have some great laughs and made some awesome memories.20140729_092655

Our ride home. .Elijah was so excited to finally be going home

Our ride home. .Elijah was so excited to finally be going home

We returned to Alice no wiser than we left, and hopeful and prayerful, that maybe he would just begin to improve as he had extended rest. He appeared so well, but that was because he was able to rest all day.

Since we have been back home, he has gained 2kgs and has had more energy than before. He had been generally well, though still feeling nauseous, and fatigued but not enough to slow him down as before.Until last night when Elijah once again began vomiting and high temp and today can’t leave the couch. He is definitely not as bad as he was before which is a plus but it is wearing to know that the battle isn’t over.

We are grateful it is not some of the diseases that the symptoms were pointing to and we have seen the hand of God in this time, but it has definitely been a struggle and has made it harder to have the same energy for the ministry we are a part of here.

We thank you for all who have, and will, pray as we continue down this journey. It continues to be a mystery. Our hope is in our God who is faithful and carries us through every circumstance. The steadfast love of the Lord never ceases!

Elijah’s eye is fully recovered and the eye doctor said yesterday that it has no scarring and so good that you can not even see that he had ever had it. We are so blessed to live in Australia. We have an amazing health system.

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When things don’t go to plan

One of my favourite books to read is about a couple who are working in Mozambique. Heidi and Rolland Baker. They are real. They speak of the awesome miracles, the move of God, the triumphs, but they also speak of the times when God doesn’t heal, when devastation comes and how God is still in their midst. Although we are yet¬†to see the magnitude of the move of God that they are seeing (I believe we will), I am reminded as Heidi says, ‘it is about the one who is before you right now.’ One person at a time. Show that one person the love of Jesus. Listen to that one person’s story. Pray for/with that one person. Smile or cry with that one person.

Today as Ben and I visited the hospital we encountered incredible grief and people’s fear and disappointments.¬† One lady was praying for a miracle that her foot be healed, we had just seen her husband come in to ICU with little to no chance of surviving (he is only in his late 30s maybe early 40s) he had suffered multiple heart attacks, and all his organs were shutting down. But God moved and he is a walking talking miracle! He has gone back home now! And his wife, seeing the miracle of his life restored, believed she too could be healed, and we believed with her, but today the day of the operation came and there was no improvement, so she lost her foot. She is trying to remain positive. We prayed that God’s peace would surround her, and I could feel Him in her room.

Another lady is feeling so alone, and should have been discharged from hospital but they have nowhere for her to go. She has only one leg and is¬†a dialysis patient so it is too hard for her to go home to community. She feels so alone and unwanted. She feels she is not an old lady (and she’s not, she is barely 50), but they want her to go to the old folks home. That scares her. We prayed God’s peace for her and a way through.

One other woman I visited today is the same age as me. She has been crippled by a car accident. She is struggling with many things. She has seen heaven. And tears come to her eyes as she explains Jesus. But reality is tough for her. Life isn’t fair and it’s definitely not easy. Her relationships are hard and she too is so lonely.

We had visited a little boy who is 2 and is unwanted by the mother because she wanted a girl. He just wants/ needs to be loved. What will become of him? In this country we can’t just take them home and provide for them. There is a ‘system’ that little boy will have to go through.

I would love to say that every person we are praying for is being healed, and yes we are seeing the ‘miracles beginning to flow’, however we are very much still in a fallen world, a world groaning¬†for its Maker. Things¬†don’t go always according to our plan, or the way we think would be right… but we are seeing and feeling God in the midst of us. And we are seeing¬†our Lord Jesus¬†opening people’s eyes and ears to Him. We have the privilege of not just¬†walking their victories with them, but also walking with them in the Valley of the Shadow…¬†These times make us remember to keep it all in perspective-¬†keep our eyes on the eternal- that is the true and¬†only lasting¬†plan.

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